Resources and Tools
The use of ADRC biospecimens for research is subject to approval of an ancillary study proposal by the ADRC Biospecimen Committee and availability of the requested specimens. Investigators must have the approval of their local IRB and funding for the shipment and handling of specimens. To submit your request for human tissue specimens, please click the biospecimen Request button or click here to directly navigate to the Biospecimen Request Form.
ADRC’s Biospecimen Review Committee convenes every other month to review requests to use available specimens being housed at UF, which serves as the ADRC biorepository.
- Frozen brain tissue
- Slides from fixed brain tissue
- Longitudinal plasma
- Longitudinal serum
Biospecimen Request Process
We want to keep our process as simple and seamless as possible for you. There are just three easy steps needed to receive biospecimen samples!
- Fill out the Biospecimen Request Form. Once the form is submitted you’ll receive a confirmation email of a successful submission.
- Your request form is sent to a committee who will review the request.
- The committee will notify you of the status your request!
Data is stored in Unified Data Store. Data requests can be submitted to data store.
What data are available?
The 1Florida ADRC collects measures and batteries of neuropsychological tests for its study participants to determine cognitive function. These measures and batteries include the National Alzheimer’s Coordinating Center’s Unified Data Set as well as other industry standard measures and measures in development by the 1Florida ADRC. In addition to measures, imaging data and metadata for samples collected are retained for tracking and analysis. All of the measures, images and analysis performed by the 1Florida ADRC is captured in the unified data management store (UDMS) which acts as a repository to house center activity.
Explore our Data Element Dictionaries
Below are a collection of data dictionaries, including NACC and Non-NACC form sets, to assist you with the codes needed to complete your dataset request:
How can you get access to the data?
The 1Florida ADRC uses a vetting process to accept, review and approve requests for datasets. To start this process please click this link to fill out a form which will be reviewed by the Data Analysis and Statistical Core. For more information on what data is available and what codes to use, explore the Data Element Dictionaries linked to the left.
What is NACCulator?
NACCulator is software developed to convert REDCap’s comma separated value (CSV) format into fixed width format for upload to the National Alzheimer’s Coordinating Center’s (NACC) submission system. The 1Florida ADRC utilizes REDCap (www.project-redcap.org) to deliver and capture the NACC’s Unified Data Set.
Why should I use NACCulator?
NACCulator is developed in the Python programming language and is used to extract, format and upload to the NACC’s submission system. The NACCulator software performs data quality checks based on the rules used in the NACC’s submission system. NACCulator is reliable and repeatable.
Where can I get NACCulator?
NACCulator is a free and open source software developed by the Clinical and Translational Science Institute – Informatics and Technology division. If you would like to utilize NACCulator in your upload and submission processes, please click the link below which will take you to an industry standard software sharing site on GitHub. There you will find instructions and resources to install and use the tool. If you have further questions about how to use the software please email email@example.com.
What is DxSter?
DxSter, the Alzheimer’s disease Algorithmic Diagnostic Helper, is a codified algorithm that can diagnose normal cognition, MCI and Dementia. Codifying the AlgDx algorithmic diagnosis project is an effort to translate the algorithm that calculates the physician and clinical diagnosis.
Why should I use DxSter?
The algorithm is designed to reduce the number of cases that need review in consensus conference. DxSter services as a valid alternative that reduces time, effort and biases associated with consensus diagnosis.
Where can I get DxSter?
DxSter is a free and open source proof of concept software developed by the Clinical and Translational Science Institute – Informatics and Technology division. If you would like to utilize DxSter, please click the link below which will take you directly to the tool. There you will find instructions and resources to use the tool. If you have further questions about how to use the software please email firstname.lastname@example.org
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