All investigators using 1Florida ADRC data are required to: 

1. Include the NIH grant citation:
   • “This research was supported by the National Institute on Aging (NIA) through the 1Florida Alzheimer’s Disease Research Center (P30AG066506).”
2. Ensure NIH Public Access Compliance by uploading final peer-reviewed manuscripts to PubMed Central (PMC) immediately upon publication confirmation.
3. Notify the 1Florida ADRC via email (emilymatusz@ufl.edu) when:
   • A manuscript using ADRC data is accepted, published, or presented
   • A previously submitted manuscript changes journals or status
   • A publication appears on PubMed but does not yet reflect PMC compliance

Why this matters: Our team monitors publication compliance as part of NIH reporting (RPPR). 

These reviews aim to ensure that: 

• All works using 1Florida ADRC data are properly cited
• PMC IDs are submitted
• Nothing appears “out of compliance” in NIH RePORTER or in our RPPR submissions

If your publication appears out of compliance, you will be contacted to ensure necessary updates are made. 

Questions about compliance?

Please email emilymatusz@ufl.edu if you’re unsure how to properly cite the grant or notify us of a publication.

Describing the 1Florida ADRC in Your Manuscript

When publishing work that uses 1Florida ADRC data, we recommend the following:

1. Data source statement example:
   • “This study used data collected by the 1Florida Alzheimer’s Disease Research Center (ADRC), a consortium funded by the National Institute on Aging (P30AG066506). The 1Florida ADRC includes participants evaluated at sites across Florida as part of a multi-institutional collaboration.”
2. When describing your dataset, be specific about:
   • The version of the dataset used (e.g., “data freeze through July 2024”)
   • Whether your data include Uniform Data Set (UDS) cognitive measures, neuroimaging, autopsy-confirmed diagnoses, etc.
   • The inclusion/exclusion criteria and visits used (e.g., “participants with at least two UDS visits”)
3. Contact us if unsure. Please email byawer@ufl.edu for help describing your data source accurately.

Frequently Asked Questions

Have questions about timelines, data delivery, biospecimen requests, or how the review process works? Our FAQ section covers the most common questions investigators ask when planning and submitting projects through the 1Florida ADRC.

View Our FAQs